Haley

Finally getting a good routine down<3 •My TPN “tray” I find very helpful keeping me clean and organized when setting things up✨🫧💕 • • #totalparenteralnutrition #tpn #nightroutine #chronicillness #ehlersdanlossyndrome #potsawareness #chronicallyill #malabsorption #setuptpn #fypシ #trending #pjs #goodnight #asmr #notthefullprocess #trendingaudio #growtogether

Some Chick-fil-A nuggets sound so good 😭 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #chronicillnessawareness #chronicillness #fypシ #foryoupage #fyp #awarenessmatters #iwantchickennuggets #iwish #asmr

If you have questions about what I’m Setting Up and and a explanation:) Check out one of my recent videos I explained a lot of questions perversely asked <3 • • #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #centealline #hickmancentralline #foryoupage #fypシ #trending #relatable #awarenessmatters #chronicillnessawareness

I hope you all had a good Saturday 💖 #totalparenteralnutrition #tpn #chronicillnessawareness #chronicillness #ehlersdanlossyndrome #gastroparesis #malabsorption #bloodclots #chronicallyill #foryoupage #fypシ #trending #trendingaudio #nightroutine #potsawareness #relatable #awarenessmatters

This song gave me flash backs to my older TikTok days 🤍 Also anyone else on TPN that know how to stop the anxiety of possible infection ever time you set it up, I’m terrified and keep getting worked up before I have to set it up. I can’t go through that again<3 any advice helps😅 #totalparenteralnutrition #tpn #nightroutine #ehlersdanlossyndrome #malabsorption #potsawareness #gastroparesis #chronicallyill #sepsis #bloodclots #trendingaudio #asmr #goodnight #itsgoingtobeokay #justbreathe #fypシ #trending

Let chat while I set up my TPN 🤍 Aka my version of Chick-fil-A 👀 also just a reminder this video doesn’t show the full process it is edited to make shorter, so it doesn’t show all steps of the routine:)<3 • @Vaseline #totalparenteralnutrition #tpn #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #chronicillnessawareness #chronicillness #fypシ #foryoupage #awarenessmatters #asmr #trendingaudio #fyp #chickfila

My version of a Mukbang 😮‍💨 #mukbang #totalparenteralnutrition #tpn #gjtube #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #chronicillnessawareness #fypシ #trending #awarenessmatters #foryoupage #mukbangasmr #asmr

There are several reasons why a person may need TPN, so don’t think everyone that’s on TPN has the same story:) I Hope this answers a few questions! 💛#totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #chronicillnessawareness #chronicillness #question #awarenessmatters #foryoupage #fypシ #trending

Sorry for the lack of content i haven’t been feeling well, im hopeful that the iron infusion i get next week will help with some of my symptoms! I hope you all have a good night 💕 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #fypシ #gjtube #trending #awarenessmatters #chronicillness ##asmr##hickmancentralline##nightroutine

#chronicillness #eveningroutine #nightroutine #medicaltiktok #chronicpain #chronicillnessawareness #TPN #totalparenteralnutrition #jfeeds #gjtube #hickmancentralline #routine #tired #fypシ #trending #malabsorption #ehlersdanlossyndrome #potsawareness #gastroparesis #awareness

💚you know what time it is💚 #mukbang #totalparenteralnutrition #tpn #gjtube #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #ehlersdanlossyndrome #fypシ #fypシ #trending #awarenessmatters #foryoupage #mukbangasmr #asmr

If you have any questions that haven’t been answered on my other video let me know in the comments:) Also please no unsolicited medical advice, I was medically trained to do it this way and it’s what works best for me:) ❤️ #tpn #totalparenteralnutrition #ehlersdanlossyndrome #gastroparesis #malabsorption #potsawareness #chronicillnessawareness #chronicillness #hickmancentralline #centraline #getunreadywithme #fypシ #foryoupage #trending #trendingaudio #awarenessmatters

Replying to @Crystal Casper #tunneledcatheter #totalparenteralnutrition #tpn #sanitizer #septic #germx #tooclean #godforbid #getoffmybutt #imadowhatworksforme #nevertoclean #ehlersdanlossyndrome #malabsorption #potsawareness #gastroparesis #chronicallyill #sepsis #bloodclots #fypシ #trending #response

🫧 Please no unsolicited medical advice<3, * I was medically Trained to set my own TPN up<3 * No it’s not more sanitary if you use regular nursing gloves, it’s only sterile if you use sterilized gloves and you would have to use a few pairs, no my company does not supply you with sterilized gloves to set up at home TPN, it’s not protocol and isn’t mandatory where i live:) * And No, using this much hand sanitizer or cleaning isn’t going to ☠️ me, sepsis can though and I will do anything I can to make sure i keep MY Body safe💞 the videos are also edited so it doesn’t show the full process:) * I’m on TPN for many reasons I have EDS, POTS, GP, malabsorption issues, in failure to thrive and have a low weight for my hight. TPN is getting absorbed into my bloodstream so my body can absorb all the calories and nutrients I need to survive and get my body out of starvation mode<3 @Versed Skin @Lissy Skincare @La Roche-Posay @byoma #nightroutine #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #chronicallyill #potsawareness #septic #bloodclots #relatable #relatable #fypシ #trending#trendingaudio #awarenessmatters

Let’s make dinner 😮‍💨 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #chronicillnessawareness #chronicillness #nightroutine #potsawareness #relatable #awarenessmatters #handsanitizer #foryoupage #fypシ #trending #trendingaudio #setuptpn

I’m literally so over people who don’t even put in the time of day to ask how a friend is when they are clearly struggling. I know we’re all going through something, but empathy should be a norm but everyone likes to be selfish. People need a reality check on the real world🙃. Someone in a hospital bed is praying for a life like yours. Sounds harsh but it’s the reality to many #fyp #overit #relatable

I Apologize for such repetitive content lately! My symptoms have been flaring and I haven’t had much energy<3 I promise I will post more when I’m less symptomatic <3 plus i always record myself setting it up because i can make sure i did everything correctly and watch it over for peace of mind, this video is very edited down so it doesn’t show all my steps🤍 #totalparenteralnutrition #tpn #ehlersdanlossyndrome #gastroparesis #malabsorption #chronicillnessawareness #chronicillness #nightroutine #potsawareness #relatable #awarenessmatters #handsanitizer #foryoupage #fypシ #trending #trendingaudio

@byoma @Versed Skin @Lissy Skincare @LaRochePosayUS @Grande Cosmetics @The Ordinary #totalparenteralnutrition #tpn #nightroutine #ehlersdanlossyndrome #potsawareness #pjs #goodnight #chronicallyill #malabsorption #trendingaudio #growtogether #itsgoingtobeokay #justbreathe #faith #trusttheprocess #relatable #fypシ #trending #byomaskincare #lissyskincare

Don’t forget to stay Hydrated During the hot days! No matter how that looks for you 💙💧☀️ #ivfluids #fluids #hickmancentralline #gjtube #tpn #ehlersdanlossyndrome #malabsorption #gastroparesis #potsawareness #fypシ #trending #awarenessmatters #foryoupage #sepsissurvivor #chronicillness #awarenessmatters

Now girls let’s be honest what you like more the blonde or the brown 😭💛#hair #blondeorbrunette #idk #missingmyblondehair #helpchooseplease