eviemeg🍉

seizure in town 29th Oct💙this is how we deal with seizures in public, its honestly no biggie to us anymore, we’ve done this for 7 years. i’m happy to answer any questions🩵🧠 #seizureawareness #autoimmuneseizure #lymedisease #encephalitis #awareness #foryou #advocate #braininflammation

part 2🙈 please read: this is a edited video from a clip that was originally 9 mins long. this was filmed 4th of August, a day when my tics were more active than usual, i had about 2 hours of active tics then it calmed down again. my point is, this video is edited to show you some of my tics, they’re not like this all the time❤️ #tourettes #PANS #tics #ticsawareness #tourettessyndrome #PANStics #fyp #foryou #awareness

Hazel vibes. im quite druGGed up but wanted to show my face and say hi today was so great till tonight then had a awful time hence the meds and oxygen. i am possible going home tomorrow 💕 but we will see #brainonfire #autoimmuneencephalitis #braininflammation #autoimmuneepilepsy #bsl #signlanguage

hey everyone, i just want to apologise for so much hospital and health content. i so badly want to do wheelchair dances, makeup looks, things that are more me. but i just dont feel like me so it’s hard. my content is so different than it was years ago and i’ve lost followers because i feel like i’ve lost my way. my health declines year after year and it really shows in my content. i’m really sorry i can’t do much else at the moment. thanks for sticking by me❤️i promise i’ll have other things soon😔🧠🏥 #dystonia #dystoniawarrior #dystoniaawareness #encephalitis #brainonfire #flareup #struggling #autoimmuneencephalitis

i’m really proud of how i handled this🤎 after having a rest in a cafe with mum, i got a fruit shoot (don’t judge me i didn’t want anything else🤣) and literally within 15 mins my tics escalated. we know certain drinks do this, such as pepsi max, and certain fanta flavours. this was my first fruit shoot in years so we’ve added another no no drink to the list! my guess is the sweetners. i absolutely love Robinsons, their squash is basically my safe drink. but apparently fruit shoots don’t agree with my immune system. my body was so uncomfortable, horrible discomfort of energy spreading through my limbs and abdominal muscles. this is how i know it was a tic attack, as everyday tics don’t feel like this. it’s been a while since my tics have gotten bad in public so it was difficult, the shop was busy due to it being saturday. but i just let it happen, not like i could stop it anyway. i just let people look, tic loud & proud🤎 thankfully it was pretty short thanks to emergency medication which is a muscle relaxant, the discomfort went away and we continued round the shop☺️ i last minute recorded a bit to show that these things can happen, and anyone could see this in the shops. it’s important to not stare, not make rude comments, and just get on with your day. ask if they need anything if you’d like. the reality of tourette’s is sometimes it plays up when we don’t want it to!🧡✨ #tourettessyndrome #tourettes #autoimmuneencephalitis #tics #PANS #braininflammation #autoimmunedisease #fyp #awareness #foryou

too true for so many of us💔the gaslighting i have experienced has been awful, i’ve been talked to in awful ways, completely dismissed and it’s like they didnt even try to listen. wouldnt even talk about my diagnosis of Lyme or encephalitis, nope it was a psychiatric issue💔video inspired by a post i shared to my insta story yesterday. #relatable #fyp #foryou #lymedisease #medicalgaslighting #chronicillness #autoimmuneencephalitis #lymewarrior #bartonella #autoimmunedisease

this is why im not posting, hoping to be home tomorrow but not sure. i dont get very long to be lucid so saying slmetning now, thanms for the love already❤️ finghting this thing the best i can as always #encephalitis #braininflammation #autoimmuneencephalitis

my dancing videos look a little different now but that’s okay. i adapted this one to sitting down so if u wanna try it go ahead, it feels good❤️ *ik i’ll get comments so to clarify, i can stand, and i can walk very short distances and around my house, but i need my chair everytime we leave the house. i am having physio and on meds to try help but nothing is working yet* #fyp #wheelchairdance #disabled #autoimmunedisease #lymedisease #bartonella #encephalitis #autoimmuneencephalitis #foryou #positive

*I AM NOW HOME*💞 i got home today. i made 3 of these vlogs as i have no memory of the first 2 days in hospital and wanted to keep track🏥 sorry for all the hospital content and gloomy vibes. its been a really awful week. updates on my instagram.💕💊🧠 #seizure #dystonia #dystonicstorm #PANS #AE #autoimmuneencephalitis #encephalitis #inflamedbrain #brainonfire #bartonella #lyme #awareness #hospital #warrior

my arm has been paralysed for 5 days now, this is incredibly unusual for me. i’ve had paralysis in my left arm before or after seizures in the past couple years, but it only lasts like half an hour, often less. the last time it was paralysed for days was 2018😢it was total paralysis for a week. i just don’t understand. my mobility is the worst it’s ever been. literally, since it all started💔 thankfully it isn’t completely dead, im starting to lift it a little but i can’t use it for anything. but it will pass and i know that. i got this❤️‍🩹 #paralysis #autoimmunewarrior #lymedisease #bartonella #foryou #fyp #armparalysis #encephalitis #braininflammation #basalgangliainflammation

i can confirm she infact was never there🥲 #seizures #autoimmuneencephalitis #foryou #fyp #medicalgaslighting #seizure

coraline part 2💙💛 #signlanguage #britishsignlanguage #BSL #acting #coralinejones #coraline #fyp #foryou #spookyseason #halloween

❤️🍁🍄🍂 #fyp #trend #trending #redhair #colouredhair #autumn #fall #foryou

i love this trend❤️i love watching them all, so many of us have come so far❤️yes my life is extremely difficult at times and i go through a type of hell which most people will never understand or experience, but i actually do think life is beautiful. it’s all in the little things✨the way i always wave at branches because it looks like leaves are waving at me in the wind. the way my dog twitches all over when he’s dreaming. the way my paints blend together, the way my rabbits are all totally in love with eachother, the way my mum looks when she laughs, the way my dad lights up when he sees Teddy after being at work all day. the way Lottie constantly looks for me. the way the clouds can create shapes that look like they’ve been painted with a brush🖌️so so many things you don’t realise unless you look. depression puts us in a dark bubble and we can’t see outside of it. but as i came out of it, i noticed so many things❤️ look around you, there’s so much to notice❤️🫶🏻✨ #fyp #trend #MentalHealth #PANS #depression #mentalhealthrecovery #mentalhealthmatters #foryou #relateable

wrld mental health day💛 this is so important to me. i wish i knew this when i was younger, that i’d grow up to be an actual artist (!!!!!) with so many supporters who love my art and it goes all around the world🌏and more importantly, i LOVE doing it. and i love the finished products🥰 your school work does NOT define your worth. please trust me. if you’ve been through/going through the same thing right now, imagine me hugging you. it’ll be okay❤️you’ll find your way, promise❤️ #artist #worldmentalhealthday #MentalHealth #schoolmentalhealth #fyp #foryou #mentalhealthmatters #mandala #mandalaartist #youngmentalhealth

surreal🥲🥴 #fyp #seizures #autoimmunedisease #encephalitis #autoimmuneencephalitis #medicalgaslighting #foryou (in all seriousness it was so upsetting and traumatic, and we are doing something about this👍🏼)

one arm makeup routine 💞 im a pro at this now🙈 #makeup #fyp #MakeupRoutine #foryou #paralysis #autoimmunewarrior #encephalitis

@Wrendale Designs i’m the luckiest girl. (filmed 2 days ago, been home 3 days now) thank you SO so much🥰🐘✨ #unboxing #unboxingvideo #foryou #wrendale #plushies #plushtoys #autoimmuneencephalitis #gifting

thankfully i haven’t had to do this in like 3 years and won’t be in a hurry to do it again🙈 on another day this might of been no problem, but today my tics became severe after reacting to a drink. but we needed this photo so had to be done!😅🤎 #tourettes #tourettesawareness #tics #tourettessyndrome #PANS #encephalitis #fyp #disabilityadvocate #ticloudandproud

i jist had to share this🤣 this was filmed the night i went in to hospital, at half 2 in the morning. i’d been given a high dose of muscle relaxants to stop my seizures which left me rather high and i have no memory at all of any of this, and no clue what im on about🤣🧠 enjoy! #foryou #fyp #seizure #hospital #lorazepam #autoimmuneencephalitis #autoimmuneepilepsy #VoiceEffects