thistrippyhippie

it’s not funny but it is a bit 😭 this is one of those laugh or you’ll cry situations🥲 (i didn’t injure my back doing contortion and i don’t have scoliosis, i have cervical dystonia) #fyp #darkhumor #dystoniaawareness #dystonia #cervicaldystonia #gymnast #contortion #contortionist #foryou

if you watch the whole thing - thank you💜 this isn’t easy for me to talk about but i’ve been wanting to for quite a while now. there are many reasons my tics are much better these days, but there’s also a reason i don’t make tourettes/tic videos anymore and even edit tics out of my videos. 2021 had a huge effect on me that i did talk about at the time but the effects are still ongoing even now💜back then i was asked by writers and interviewers to talk about the ‘rise in tics’ with them for articles etc and i kept turning them down. in 2022 i was also invited on the documentary that channel 4 did and again i also turned that down and i’m very glad i did. it is just such a difficult topic for me, i still can’t quite believe everything that happened🥴 some things to note: - because of the inflammation in my body and brain, it’s likely i have functional tics aswell as tourettes. i have shown before the difference in my PANS tics VS my daily tics from tourettes. my PANS tics are more severe, and incredibly complex. - the ‘rise in tics’ during lockdown was a rise in functional tics, very different to tourettes which is a life long genetic disorder, has a different and slower/more gradual onset, different presenting tics & many other factors that are different. - functional tics ≠ fake tics - i believe my tics being so bad during 2020 & 2021 was due to my PANS, which makes sense because of the extreme amount of infection that was around at the time. (even though yes i’d had tics for years before then as shown in the video, but i have a mix of tourettes & PANS tics, both diagnosed) im really worried about saying something wrong but thank you for watching & listening to this and hopefully it answers all the questions i’ve been getting💜🧠 #tics #tourettessyndrome #tourettes #foryou #dailymail #foryoupage #functionaltics #encephalitis #ticsandtourettes #PANS

cutest trend 🥹 she forgot about my hand at the end 🤣 #fyp #foryou #mum #mom #trend #mumanddaughter #loveyou @Jedisgirl

can’t believe it😭 my last tonic clonic seizure was 9th of december 2024. I HAVEN’T HAD A TONIC CLONIC THIS YEAR!! who is she😭 forever grateful to my doctors for my treatment plan & antibiotics. i’ve had seizures for 8 years and literally don’t know the last time i went this long without a tonic clonic. i’ve had some absences & unusual seizure moments but nothing major or convulsive. it’s so crazy😭 it’s so hard to celebrate this win with my dystonia being the way it is but genuinely it’s baffling to me im so happy about it🥰💜☮️ #fyp #seizures #autoimmunedisease #autoimmuneepilepsy #seizurewarrior #inflamedbrain #encephalitis #lymedisease #bartonella #foryou

*trigger warning, OCD compulsions, seizures, tics, catatonia, cannula, potentially upsetting footage* i’ve had a lot of people asking me for a while now if im actually seeing improvements from my treatment. so i made this video to show you☺️looking at some of these videos, especially from 2022 when i was really sick i can see a huge difference in my face, and im so proud of how far ive come and im so so thankful i am finally being treated. my sudden onset was when i was 14, and my encephalitis wasn’t discovered until i was 22, then my lyme disease & bartonella wasn’t found till i was 23/24. this is why its such a long journey, my doctors did tell me early on its not going to be easy because these infections have been undiscovered in my blood for such a long time. i am have soooo much further to go but seeing these improvements is so promising🤍🫶🏻 if you are on a treatment journey right now, don’t give up, stick with it. some of it is absolutely awful and might make you worse for a while, but don’t quit, it does get better🤍 #fyp #awareness #encephalitis #seizures #autoimmuneencephalitis #lymedisease #bartonella #seizureawareness #lymewarrior #dystonia #advocate #treatmentjourney

yet another cute trend 🩷🫶🏻✨ #nickname #nicknametrend #fyp #foryou

a day with cervical dystonia💙 people wondering ‘why isn’t she replying, why isn’t she posting, why isn’t she working’ meanwhile me: 😅 this is just one day, less than 24 hours. i randomly realised one day how much my dystonia fluxuates throughout the day, changing, spreading. so i had an idea to record every time in the day the contractions started. (i’m contracted 24/7 with a head tilt and cervical curve but contractions worsen when in episodes. e.g my neck muscles and veins pop out when more intense contractions are happening) 💪🏼i’m going to show this to my physio but also thought i’d share publicly. for awareness on a condition 6 years ago i thought i knew everything about. here i am now at 24 and its so much more than i ever thought or acknowledged🤣🙈 i’m sharing because i haven’t found anyone like me. i have cervical dystonia online friends, all of us struggling in our own different but similar ways. but none that look like me. and i’ve been looking at google images, looking at #cervicaldystonia hashtags, anywhere i can to find a photo or video of someone who is curved and twisted in the shape i am due to dystonia. (it looks like scoliosis but it’s not) so if i saw this video 3 months ago, i wouldn’t have felt so insane, and felt so much less alone than i do right now💙 cervical dystonia warriors, i see your struggle & we should be applauded bc this shit is absolute physical torture. we are f*ckin bad ass💪🏼💙 *please no negative comments on my body, it’s going through a lot lol* #dystoniaawareness #fyp #movementdisorder #cervicaldystonia #dystoniawarrior #foryou #encephalitis #lymedisease #ehrlichia

doctors advice #fyp #trend #foryou #shimmyaday @Holly H

wish i was lying when i say i tested positive for nearly all of these🤦🏻‍♀️if you have PANDAS PANS but symptoms persist despite treatment, there’s probably an infection like bartonella. and they’re the real monsters! very niche topic but video for education & awareness purposes💖#lymewarrior #lymedisease #bartonella #babesia #fyp #awareness #education #autoimmunedisease

sorry but this is SO hilarious i am cracking up #tourettes #tourettessyndrome #hoziersyell #trend #fyp #foryoupage #foryou

Replying to @undeadbean_ top 3 things not to say to someone with an illness or disability😅just using this comment for education, i’m totally fine!🫶🏻💕 (so sorry for the mic sounds!) #dystoniaawareness #foryou #autoimmunedisease #dystoniawarrior #fyp #advocate #awareness #chronicillness

#duet with @Tiree Tea why did this make me feel so much better about myself😭🥹#dystonia #cervicaldystonia #fyp #awareness #Love #wonkylamb

Replying to @codietyler0 🤣😫 seriously the fake claiming is so old. you really think if i was doing this deliberately i wouldn’t have been found out or me and my family slipped up in the last decade?🤣 #fyp #dystoniaawareness #cervicaldystonia #autoimmunedisease #hatecomments #foryou

a totally different time🩷 the year my seizures started with a sudden and severe onset which required daily ambulance’s from college, hallucinations were worsening, i had ‘imaginary friends’, delusional, in a abusive relationship, a flight risk and more. all my issues were actually brain inflammation, lyme disease and bartonella. i really don’t recognise her🩷 #fyp #trend #foryou #recovery #seizures #encephalitis #MentalHealth

if you think you know what Lyme Disease is, think again💚 i kept everyone anonymous but hopefully they don’t mind me sharing, i think it’s amazing for awareness. to those who have lost loved ones to Lyme Disease, i’m so sorry. pause if you need to but please watch💚🫶🏻 #lymedisease #lymediseaseawareness #advocate #awareness #lymediseaseawarenessmonth #lymewarrior #lymeticksmeoff #fyp #foryou

rabbit people will know how rare this is. my current 3 would never allow me to do this, my 2 girls don’t even let me touch them. Bonnie would absolutely savour every moment like this. she loved it, the more contact, the more kisses, the better🩷 she was more than a rabbit, she was like my second dog. my soulmate bunny🥰i am still so angry she was taken from me when i wanted so much longer with her. my beautiful big girl🤎this was heaven for me and i’d do anything to experience this feeling again🩷✨ #trend #trending #frenchloprabbit #frenchlop #fyp #foryou #giantrabbit #petloss #petgrief

snippets of life ep 1💗 mini daily vlog, today we went to a dog friendly cafe and i had such a nice time☺️so lovely to see teddy like this as he often gets overwhelmed in public places. we plan to go here much more often now! here’s to april being a good month💗🤞🏼 #dailyvlog #Vlog #dogmum #dogsofinstagram #vlogging #dystoniawarrior #cervicaldystonia #dogcafe #fyp #foryou

i truly believe it happened for a reason and my platform is the reason. to use my voice, build a community and raise awareness 💗🦋 #fyp #butterflyeffect #trend #foryou

i need motivation pls😅 hit me with your worst or ill have no art for you this easter #fyp #foryou #artist #art #mandalaartist

yep, still ticcing away everyday no matter what it may look like online💗my most common tics atm are the notification whistle, and ‘shut up’🙈 i’m sorry for not posting, i’ll do a chatty catch up soon🩷 there’s a lot going on #tics #tourettes #tourettessyndrome #autoimmunetics #awareness #fyp #motortics #complexmotortics #vocaltics